Category Archives: Diabetes Advocacy

Diabetes Blog Week: Change the World

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I’m participating in Diabetes Blog Week (albeit late). I’m hoping these prompts will re-inspire my writing and encourage lots of blood sugar checks 🙂

Today’s Yesterday’s Topic: Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. Are you passionate about 504 plans and school safety? Do diabetes misconceptions irk you? Do you fight for CGM coverage for Medicare patients, SDP funding, or test strip accuracy? Do you work hard at creating diabetes connections and bringing support? Whether or not you “formally” advocate for any cause, share the issues that are important to you. (Thanks go out to Kim of Texting my Pancreas for inspiring this topic.)

This is a hard one for me, as I’m not really a formal advocate for any of these topics — rather a small voice for many. If I had to choose a couple that I’m most passionate about, they’d be these:

-Diabetes misconceptions. I can’t stand it when people ask me if I should be eating something, or if I’ve finally figured out how to keep my numbers from being out of control after all these years. I do realize, though, that just as I don’t know everything about every single disease, some people have no reason to have ever learned much about diabetes. So it’s my job to educate, if they’re interested.

-CGM coverage for Medicare patients. This one hits home for me. Some days I honestly don’t know if I’d wake up without my CGM. I can’ t imagine the feeling of helplessness these CGM users feel as this life saving device is being ripped from their arsenal of diabetes management tools. Point blank, it’s just not fair. My CGM has proven time and time again to help me better manage my diabetes — I can’t understand why insurance would want to take this away from someone. It’s just going to cost the insurance companies more in the end.

-Creating diabetes connections and bringing support. This one is very important to me, too. I’m lucky (?) to have a sister with diabetes who I can call at any hour of the night. I know how nice it feels when a friend calls you after you have two days of crappy blood sugars, just to tell you “I know how you feel. Diabetes is dumb.” Because I know how important these interactions are to my well being — I work hard to reciprocate.

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world diabetes day 2013

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In celebration of World Diabetes Day:

  • My pump woke me up at 2am, screaming “I HAVE NO INSULIN LEFT IN ME.” I replied, “ME NEITHER,” and tried to roll over and go back to sleep, but then I thought better of it and decided I didn’t want to be swimming in ketones come 6am.
  • I forgot to test my blood sugar until about 3 minutes ago! It was 78, so I win, but even with my CGM I try not to play that game. The more you know! (the better)

Happy Day to you all, here’s to hoping we can raise awareness in a few more people today.

d.a.m. 2013

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When November 1st, 2012 hit – I feel like I was in such a different spot in regards to my attention to diabetes (both generally and specific to my diabetes). Actually, I was on the way home from a work conference, pimping my blue circle earrings, ready to celebrate (educate)!

This year, I’ve been so busy with work and life that I’ve barely even noticed that Diabetes Awareness Month is upon us. Yes, I knew it was November when I woke up this morning, but I had no plans to shout from the rooftop what this month means to me. That is, until I received two Facebook notifications that reminded me how much the people near and dear to me (who don’t live with diabetes themselves) care about finding a cure.

From a dear childhood friend’s profile:

Mari FB Post
My Mama’s new cover picture:

Mom Cover Picture

Just because I’m busier (or maybe just going through a small diabetes burnout) doesn’t mean I can’t find time to take advantage of Diabetes Awareness Month and educate folks, celebrate our successes, and just enjoy a month of blue with you fine people.

Also, for day one of Diabetes Month Photo A Day (day 1, past):
I call this “way past time to change my sensor.”
Dexcom Sensor
Sensor Expiring

yay crestline.

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I love October. The leaves are changing, crisp fall weather is here, and I get to wear boots. Not to mention, the whole US seems to get decked out in pink. I’m not a fan of pink (I’m not very girly) but I love the notion that so many people can get behind one cause — to fight breast cancer. It’s amazing to see so many people come together.

I also love November, for all of the reasons mentioned above in regards to weather and fashion — plus, it’s diabetes awareness month! My one wish, though, is that I would see more people coming together to fight diabetes. I wish that Jay Cutler would sport blue on the field! (For the record, I’m not bitter that other diseases get attention — breast cancer has affected people that I know and love and I wish we could cure it. Just saying that it would be awesome to go from a month of pink to a month of blue. I also know there are thousands of diseases that deserve awareness that don’t get enough attention. I just happen to live with type 1 diabetes.)

Anyways, I was working away the other day, and an e-mail popped into my work inbox from Crestline (a company I order promo materials from for work) – subject line ‘November Awareness Items – On Sale Now!’ I gasped! Could it be!?

Crestline Email Header
Crestline Items
Crestline Items 2

How awesome is that? Yay Crestline! Only thing that confused me was the mints (last picture, right side). I thought they were glucose tablets, but alas — mints for ‘The Great American Smokeout’.